The Corneal Dystrophy Foundation and Fuchs’ Friends provide support and education for patients and families with corneal dystrophies
The Corneal Dystrophy Foundation is a not for profit (501c3) organisation that is made up of caring people whose lives have been altered by a corneal disease. They provide patients or family members with information about different corneal dystrophies and guidance on giving or receiving support. They provide a secure support group website that seeks to educate on all aspects of corneal dystrophies and give access to moderators who can help answer questions. They compose written educational materials, publish newsletters and host webinars. They organise and deliver an annual symposium with corneal experts presenting the latest research and sharing recent advances in the field.
As a cornea specialist, it is my duty to educate patients about corneal disease including dystrophies. I am happy that the Corneal Dystrophy Foundation provides such an excellent service, providing both education and support to my patients. I highly recommend that any patient suffering from a corneal dystrophy seek the opinion of a cornea specialist to find out more about the disease and the options for treatment, but also make contact with the foundation and learn more about the support options.
An important role of the Corneal Dystrophy Foundation is to educate patients on the recent advances in corneal surgery. They provide a means for patients to learn more about minimally invasive surgery techniques, including Descemet’s membrane endothelial keratoplasty (DMEK) or Descemet’s stripping endothelial keratoplasty (DSEK). I perform both of these advanced corneal transplant techniques, which offer a more rapid improvement in vision and a safer surgery compared to a full thickness transplant. Please see the Cornea Surgery section of my website for more information.
If you have been diagnosed with a corneal dystrophy or if corneal dystrophy runs in your family, do not hesitate to make an appointment for an evaluation and discussion of treatment options.
The Corneal Dystrophy Foundation can be contacted at:
The Corneal Dystrophy Foundation
6066 McAbee Road
San Jose, CA 95120
United States of America
Phone: +1 866 807 8965 Ext 1